EPISODE · Feb 18, 2026 · 41 MIN
Running Against the Odds: Marion Jones' Journey with NMO
from Invisible Strength · host Karin Wagner and Chris Burton
What does it take to rebuild your life after a rare autoimmune disease leaves you partially paralyzed during a global shutdown? Today’s guest, Marion Jones, shows us what invisible strength really looks like.Diagnosed with neuromyelitis optica (NMO) during the COVID-19 pandemic, Marion faced misdiagnosis, isolation, nerve damage, and the grief of losing the life she once knew. But her story doesn’t end there.Marion went from 30 seconds of walking to running 7 world-major marathons—New York, Chicago, London, Berlin, and soon Tokyo and Boston—raising awareness for rare diseases every mile of the way. 🏃🏾♀️✨She is now a powerful advocate, speaker, and upcoming author sharing her mission to inspire resilience, visibility, and hope for the chronic illness community.If you need a reminder that small steps can lead to unbelievable transformation, this episode is it. 💙⭐ IN THIS EPISODE YOU’LL LEARN:✔️What it’s really like to be diagnosed with NMO during the pandemic✔️How Marion rebuilt strength after partial paralysis✔️Why she shifted from grief to gratitude✔️The mindset that carried her through 7 marathons in 2 years✔️How to balance chronic illness with career, ambition, and rest✔️Why advocacy matters—and how your story can help others✔️The meaning of “invisible strength” in the face of adversity🕒 CHAPTERS00:00 – Welcome + Intro to Marion Jones01:31 – The Diagnosis: Understanding NMO09:30 – From 30 Seconds to Marathons17:28 – Shifting Grief to Gratitude22:02 – Advocacy, Community & Chronic Illness Visibility31:50 – Marion’s Book + What’s NextSUPPORT MARION’S MARATHON MISSION: Help Marion raise funds for life-changing care at Lahey Hospital and Medical Center: https://www.givengain.com/project/mar...Every donation supports research, patient care, and rare disease advocacy.💬 JOIN THE CONVERSATIONWhat does your invisible strength look like today?Drop your thoughts in the comments—your story could inspire someone who needs it.🎧 LISTEN TO THE INVISIBLE STRENGTH PODCASTHosted by Karin Wagner & Chris Burton, @baddestchaplain, spotlight real stories of resilience from people living with chronic illness and autoimmune diseases.🌿 Need Support Living With Chronic Illness?Invigorate helps people with chronic conditions move from fear & overwhelm → to clarity, steadiness, and a life that feels like YOU again.✨ Rebuild your life → 🌟 Top Picks → Support Groups → Coaching ↓ ➡️https://www.invigorateyourjourney.com💙 Connection💧Guidance ✨Transformation🎧 Subscribe for MoreHonest conversations about invisible illness, resilience, and thriving despite the hard days.Hit the 🔔 so you never miss an episode.⚠️ Disclaimer: This content is for general education and shared lived experiences only. It is not medical advice. Always consult your healthcare team before making changes to your treatment or lifestyle.
What this episode covers
What does it take to rebuild your life after a rare autoimmune disease leaves you partially paralyzed during a global shutdown? Today’s guest, Marion Jones, shows us what invisible strength really looks like.Diagnosed with neuromyelitis optica (NMO) during the COVID-19 pandemic, Marion faced misdiagnosis, isolation, nerve damage, and the grief of losing the life she once knew. But her story doesn’t end there.Marion went from 30 seconds of walking to running 7 world-major marathons—New York, Chicago, London, Berlin, and soon Tokyo and Boston—raising awareness for rare diseases every mile of the way. 🏃🏾♀️✨She is now a powerful advocate, speaker, and upcoming author sharing her mission to inspire resilience, visibility, and hope for the chronic illness community.If you need a reminder that small steps can lead to unbelievable transformation, this episode is it. 💙⭐ IN THIS EPISODE YOU’LL LEARN:✔️What it’s really like to be diagnosed with NMO during the pandemic✔️How Marion rebuilt strength after partial paralysis✔️Why she shifted from grief to gratitude✔️The mindset that carried her through 7 marathons in 2 years✔️How to balance chronic illness with career, ambition, and rest✔️Why advocacy matters—and how your story can help others✔️The meaning of “invisible strength” in the face of adversity🕒 CHAPTERS00:00 – Welcome + Intro to Marion Jones01:31 – The Diagnosis: Understanding NMO09:30 – From 30 Seconds to Marathons17:28 – Shifting Grief to Gratitude22:02 – Advocacy, Community & Chronic Illness Visibility31:50 – Marion’s Book + What’s NextSUPPORT MARION’S MARATHON MISSION: Help Marion raise funds for life-changing care at Lahey Hospital and Medical Center: https://www.givengain.com/project/mar...Every donation supports research, patient care, and rare disease advocacy.💬 JOIN THE CONVERSATIONWhat does your invisible strength look like today?Drop your thoughts in the comments—your story could inspire someone who needs it.🎧 LISTEN TO THE INVISIBLE STRENGTH PODCASTHosted by Karin Wagner & Chris Burton, @baddestchaplain, spotlight real stories of resilience from people living with chronic illness and autoimmune diseases.🌿 Need Support Living With Chronic Illness?Invigorate helps people with chronic conditions move from fear & overwhelm → to clarity, steadiness, and a life that feels like YOU again.✨ Rebuild your life → 🌟 Top Picks → Support Groups → Coaching ↓ ➡️https://www.invigorateyourjourney.com💙 Connection💧Guidance ✨Transformation🎧 Subscribe for MoreHonest conversations about invisible illness, resilience, and thriving despite the hard days.Hit the 🔔 so you never miss an episode.⚠️ Disclaimer: This content is for general education and shared lived experiences only. It is not medical advice. Always consult your healthcare team before making changes to your treatment or lifestyle.
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Running Against the Odds: Marion Jones' Journey with NMO
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