S3 Ep3 Beverley de Gale & Orin Lewis from the African Caribbean Leukaemia Trust

In this episode, I chatted with Beverley de Gale and Orin Lewis, parents of Daniel de Gale, who was diagnosed with acute lymphoblastic leukaemia at the age of six, back in 1993 and was the first black individual in the UK to receive a stem cell transplant six years later. We talked about Daniel’s story and the difficulties they faced as a family in finding him a donor match and we chatted about the need for a diverse stem cell register and for people of all ethnicities to sign up if they can. Our conversation took place earlier this summer and as Sickle Cell Awareness Month was in September, we also spoke about Sickle Cell Disorder and the impact that has on families needing urgent treatment. Bev and Orin started the African Caribbean Leukaemia Trust after realising that their son, Daniel’s chances of finding a donor match were one in a quarter of a million. The work the ACLT do is incredible. I hope you enjoy the listen. You can find out more about the work the African Caribbean Leukaemia Trust do and Daniel’s story at www.aclt.org It is always such a huge privilege to be able to speak with my guests and share their stories. I hope you find this conversation both interesting and inspiring. Thank you for listening.