S4-E20 - Leveraging Patient Voice and Needs in the NASH Community

Send us Fan MailThis week, Donna Cryer (Global Liver Institute) joins Jörn Schattenberg, Louise Campbell and Roger Green for an impassioned and sobering episode which weighs the complexities of competing needs across all Fatty Liver stakeholders. This powerful and at times emotional session expands recent discourse on the ICER draft report to also consider a developing landscape around nomenclature consensus and other important and impending decisions. Critically, the group grapples with challenges associated with honoring the precedence of fighting Fatty Liver through patient-centricity. Among this rich and tremendously honest discussion are the following themes:00:00 Introduction07:40 Who is going to be the Larry Kramer of NASH?17:38 Allied Health for Patient Empowerment26:59 Generating Data to Demonstrate Patient Needs and Inform Public Health36:55 Donna’s Call to Action42:37 Can we absorb enough different perspectives into a common discussion and give them each the weight they deserve?Listen to the full feature to engage with the many insightful moments. If you enjoy the episode, have questions or interest around patient advocacy, allied health and Fatty Liver disease, we kindly ask that you submit reviews wherever you download the discourse. Alternatively, you can write to us directly at [email protected] Safe and Surf On!