S4, Ep 8- Beyond the Formulary: Uncovering the Hidden Impact of Drug Exclusions

Dr. Robert Popovian and Conner Mertens, along with guest Catherine Hicks, a patient diagnosed with juvenile idiopathic arthritis as a child, dive into the complex world of formulary exclusions. They discuss how these exclusions impact patient care and the hidden consequences they bring, including how Catherine was personally impacted. Dr. Popovian also shares learnings from GHLF’s research work, shedding light on the clinical and economic implications of these exclusions. Tune in for a deep dive into the realities of navigating health care policy and the pressing need for patient advocacy. Among the highlights in this episode: 01:50: Conner asks Dr. Popovian to explain formulary exclusions 02:30: Our guest, Catherine Hicks, shares her struggle with juvenile idiopathic arthritis and epilepsy, detailing how formulary exclusions led to severe health complications and long-term spinal damage  03:50: Catherine emphasizes the human impact of formulary exclusion decisions, highlighting how these affect not just individuals but large groups of patients 05:48: Dr. Popovian describes the research conducted by GHLF, revealing that a significant percentage of drug exclusions are neither clinically nor economically beneficial 09:06: Catherine stresses the importance of patient self-advocacy in navigating health care and insurance systems, based on her personal experiences  10:55: Conner asks Dr. Popovian about alternatives to formulary exclusions and how to combat their negative effects 11:12: Dr. Popovian discusses the lack of active legislation addressing formulary exclusions and the need for collective policy efforts to prohibit such practices 12:42: Conner summarizes the episode, highlighting the harm caused by formulary exclusions to patients like Catherine  13:12: Dr. Popovian shares some final thoughts You can watch the "Impact of Formulary Exclusions on Individual Patients" webinar at: https://youtu.be/jK0xaXGtUvk You can access both Analysis of Formulary Exclusions papers via the links below: Analysis of Drug Formulary Exclusions from the Patient's Perspective: 2023 Update https://bit.ly/ExclusionsUpdate  Modeling the Effects of Formulary Exclusions: How Many Patients Could Be Affected by a Specific Exclusion? https://bit.ly/SpecificExclusion  Contact Our Hosts Dr. Robert Popovian, Chief Science Policy Officer at GHLF: [email protected] Conner Mertens, Patient Advocate and Community Outreach Manager at GHLF: [email protected] A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments, or a video or audio clip of yourself, to [email protected] Listen to all episodes of Healthcare Matters on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.