S7, Ep 21- Special Episode: The Power of Patient Stories

Welcome to our special episode of The Health Advocates hosted by our 50-State Network and the Obesity Action Coalition (OAC). This episode features advocates Jody Quinn, Judy Nagy, Yolanda Clay, and Alecia Smith, who share their personal journeys — how they began sharing their stories, the invaluable support of community, the challenges they faced, and their successes along the way. You'll also hear their advice for others looking to make a difference. Among the highlights in this episode: 01:17 - Judy recounts how being diagnosed with rheumatoid arthritis led her to advocacy and her extensive involvement with legislative support 02:12 - Jody describes her late diagnosis of psoriatic disease and her initial reluctance turned commitment to advocacy 03:14 - Alicia talks about her journey from seeking support for obesity to becoming a prominent advocate through the OAC 04:10 - Yolanda discusses her personal experiences with chronic obesity and how overcoming internal barriers propelled her into advocacy 05:22: Kendall prompts a discussion on how to get started in advocacy, with personal insights from each guest 07:00: Our guests discuss the importance of connecting with patient groups and finding communities that provide training and support for new advocates 08:56 - Alicia emphasizes the role of genuine passion in making an impact and connecting with others through advocacy 13:20 - Alicia reflects on her initial fears and how understanding the impact of personal stories helped her gain confidence in advocacy settings 16:36 - Judy emphasizes the critical role of fellowship and mentorship in navigating the complexities of advocacy and building resilience 20:25 - Jody highlights how mentors have supported her through her advocacy journey, sharing their knowledge and boosting her confidence in various advocacy activities 23:34 - Yolanda discusses her ongoing efforts to manage expectations and maintain motivation despite the slow pace of change in advocacy work 26:20 - Judy reflects on the need for patience in advocacy, sharing her long-term experience with legislative processes and the eventual rewards of persistent advocacy efforts 28:05 - Each guest offers their advice to those considering advocacy, emphasizing the importance of community, mentorship, and personal growth Contact Our Hosts Steven Newmark, Chief of Policy at GHLF: [email protected] Zoe Rothblatt, Director of Community Outreach at GHLF: [email protected] Special Episode Co-Hosts Kendall Griffey, Communications Manager at OAC Erik Stone, Associate Director, Learning Experience Design at GHLF A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to [email protected] Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.