EPISODE · May 29, 2026 · 48 MIN
Sabina Ghebremedhin
from SARC Talk Rise to Face The Sun: The Patient Experience · host SARC Trials
This episode brings Sabina Ghebremedhin into conversation about her daughter, Natasha Allen, the creator and advocate behind who shook the sarcoma community with her unmatched radiance. Across five years of experiencing synovial sarcoma, Natasha built an extraordinary community of more than 220,000 followers on TikTok and Instagram with work that was funny, candid, and refused the tired scripts handed to young people with cancer. She was a founding member of the Sarcoma Foundation of America's Adolescent and Young Adult Committee, the inaugural guest on its Sarcoma Stories podcast, and helped design a mentorship program for young patients that launched in her name after her death. Now, her mother is here with us to continue spreading her light. In this conversation, Sabina speaks as Natasha's mother and primary caregiver about the diagnostic delays so common for young adults with rare cancers, the texture of caregiving across years of treatment, and what it means to carry her daughter's work forward. She talks about the research fund established in Natasha's name, “Natasha Allen Research Fund,” about Natasha being honored at CancerCon 2026 (the conference where she had been scheduled to give the opening keynote the morning she passed away,) and the messages that continue to arrive daily from followers whose lives Natasha touched. What comes through this episode is a mother actively carrying her daughter's light by keeping Natasha's voice present in the rooms she helped build and pushing the conversation about rare cancers and AYA patients further than it has yet been pushed. Get ready to be moved by the kind of love that lives beyond death. May Natasha rest in power: November 21, 1996 – August 22, 2025.
What this episode covers
This episode brings Sabina Ghebremedhin into conversation about her daughter, Natasha Allen, the creator and advocate behind who shook the sarcoma community with her unmatched radiance. Across five years of experiencing synovial sarcoma, Natasha built an extraordinary community of more than 220,000 followers on TikTok and Instagram with work that was funny, candid, and refused the tired scripts handed to young people with cancer. She was a founding member of the Sarcoma Foundation of America's Adolescent and Young Adult Committee, the inaugural guest on its Sarcoma Stories podcast, and helped design a mentorship program for young patients that launched in her name after her death. Now, her mother is here with us to continue spreading her light. In this conversation, Sabina speaks as Natasha's mother and primary caregiver about the diagnostic delays so common for young adults with rare cancers, the texture of caregiving across years of treatment, and what it means to carry her daughter's work forward. She talks about the research fund established in Natasha's name, “Natasha Allen Research Fund,” about Natasha being honored at CancerCon 2026 (the conference where she had been scheduled to give the opening keynote the morning she passed away,) and the messages that continue to arrive daily from followers whose lives Natasha touched. What comes through this episode is a mother actively carrying her daughter's light by keeping Natasha's voice present in the rooms she helped build and pushing the conversation about rare cancers and AYA patients further than it has yet been pushed. Get ready to be moved by the kind of love that lives beyond death. May Natasha rest in power: November 21, 1996 – August 22, 2025.
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Sabina Ghebremedhin
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