EPISODE · Jan 13, 2020 · 22 MIN
Sarah Tompkins, on Having Ehlers-Danlos Syndrome, Having a Mis-Understood Disease, and Taking a Lead in Advocacy
from WCG Talks Trials · host WCG
In this episode, Sarah Tompkins, Patient Advocate of Ehlers-Danlos Syndrome, chats with WCG’s President of Patient Advocacy, Steve Smith. During their discussion, Sarah shares with us her experience being a patient with a genetic rare disease who is involved in a clinical trial.
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Sarah Tompkins, on Having Ehlers-Danlos Syndrome, Having a Mis-Understood Disease, and Taking a Lead in Advocacy
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