Sarah Tompkins, on Having Ehlers-Danlos Syndrome, Having a Mis-Understood Disease, and Taking a Lead in Advocacy

In this episode, Sarah Tompkins, Patient Advocate of Ehlers-Danlos Syndrome, chats with WCG’s President of Patient Advocacy, Steve Smith. During their discussion, Sarah shares with us her experience being a patient with a genetic rare disease who is involved in a clinical trial.

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How long is this episode of WCG Talks Trials?

This episode is 22 minutes long.

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This episode was published on January 13, 2020.

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