Sarita Edwards, Patient Advocate

Sarita Edwards is CEO & President at the E.WE Foundation, a nonprofit healthcare advocacy organization. She began her efforts of advocacy and public policy after her 5th child was diagnosed in utero with rare disease Edwards Syndrome or Full Trisomy 18. Sarita is recognized as a world's top patient expert and social health ambassador. She is an award winning advocate and host of the Being Rare Podcast, a digital resource hub and community conversations platform popular for its 60 second episodes. Sarita serves on executive boards and advisory councils within her home state and across the country. She is a rare disease legislative advocate, a member of multiple coalitions, and an active participant in DEIA workgroups. Sarita also serves as a Community Congress member providing advice and insight on urgent policy initiatives. Sarita has a Bachelor of Science is Health Science and is a candidate for her Masters in Healthcare Administration. She has professional experience in Healthcare Operations & Patient Access. Sarita has certifications in Seizure Recognition & First Aid from the Epilepsy Foundation and Mental Health First Aid from the National Council for Behavioral Health & Mental Wellbeing. Additionally, Sarita has continuing education studies in effective parenting, understanding childhood behavior, and child abuse & neglect prevention. Sarita lives in North Alabama with her husband and their five children.