Scott Schara – A Father's Fight to End Forced Medical Isolation #11

Steve Reiter speaks with Scott Schara, whose daughter, Grace, born with Down syndrome, tragically passed away in October 2021 following forced medical isolation during a hospital stay. Scott shares Grace's joyful spirit, how their family navigated hospital protocols, and how his advocacy seeks to protect others from experiencing the same injustice. Together, they discuss the limits of patient rights, the shortcomings of the ADA, and the importance of love and humanity in healthcare. Outline: 00:00 April Fool's Day Memories 03:26 "Unexpected Joy in Grace's Birth" 07:18 Welcoming Parenthood and Down Syndrome 11:34 "Negligence Led to Grace's Death" 16:18 Hospital Negotiation and Disability Lawsuit 17:14 ADA Critique: "Dog and Pony Show" 22:41 Pulse Oximeter Discrepancy Dispute 26:34 "Morning Hospital Incident with Grace" 30:25 Caution: Respiratory Risks with Medication 34:02 Unanswered Questions After Hospital Death 38:02 Uncovering Hospital Malpractice 38:58 Hospital Refuses Meeting After Fatality 42:31 Judgment Against Unwanted DNR Order 46:03 "Grace's Legacy of Love" 50:52 "Loving the Unlovable" 52:01 "Embracing Joy and Connection"   About The Guest: Scott Schara is a passionate advocate for patient rights and disability justice. After losing his 19-year-old daughter, Grace, to questionable hospital practices during forced medical isolation in October 2021, Scott became deeply involved in legislative and educational efforts to prevent similar tragedies. He shares Grace's story nationwide in Wisconsin to champion "No Patient Left Alone" legislation and the importance of compassion in healthcare. About The Host:  Steve Reiter is the founder of the Never Alone Project and the host of its podcast, "Every Patient's Right, Ending Isolation and Healthcare." He lost his wife to forced isolation on May 19, 2020, and believes no one should die alone. The show delves into the significant issue of forced medical isolation that began in March 2020, examining its profound effects on patients and exploring ways to balance essential medical care with the nurturing human contact that aids healing and recovery.  Share your story, learn more, listen, and subscribe at:  neveraloneproject.org