Screening for Rare Diseases

Disorder: The Rare Disease Film Festival will debut in Boston October 2 and 3 featuring a range of more than 30 films focused on topics of rare disease. The event will also include talks from filmmakers, patient advocates, and researchers as the organizers not only hopes to raise awareness about rare diseases, but also begin conversations and forge connections. We spoke to Bo Bigelow, one of the organizers of the event, about the film festival, his own search for answers about his daughter’s ultrarare condition, and why this festival is about more than just the films themselves.