EPISODE · Jun 1, 2022 · 10 MIN
SED 385: The Reaction
from Stronger Every Day: For Parents of Children with Rare Diseases · host Bo Bigelow
On this holiday weekend, something extraordinary happened with our Tess. I wish you coulda seen it. Tess's pain threshold is something else. We think it could be part of her genetic disease, Hao-Fountain Syndrome. Stronger Every Day is sponsored by The Disorder Channel. It's dedicated to rare diseases and other types of disabilities. Over 100 film and video titles, including a few video versions of this podcast. Available for free right now on Roku and Amazon Fire TV. The Disorder Channel. The most rare stories in the world. https://www.thedisordercollection.com/ Are you on our Discord server RARE & RELATABLE? It's a 24/7 chatroom for people dealing with rare diseases and other types of disabilities. We even have a closed channel for Hao-Fountain / USP7 families. Click here to join: discord.gg/7UFUPAFs8K
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SED 385: The Reaction
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