Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part I

What this episode covers

In this episode of Rare AF: Advocacy & Facts, Amanda and Brian sit down with women’s health advocateand bleeding disorders expert Dr. Amber Federizo for an important conversation during Bleeding Disorders Awareness Month. Together, they unpack the often overlooked reality that bleeding disorders do not only affect men and boys, women are also deeply impacted, and far too often dismissed, misdiagnosed or left undiagnosed altogether.Amber shares insight into the major gaps in diagnosis, the stigma surrounding menstruation and reproductive health, the challenges women face when navigating care between hematology and gynecology, and why quality of life should be a central part of the conversation. This episode shines a light on the systemic disparities affecting women with inherited bleeding disorders and why awareness, better language and stronger advocacy are urgently needed.This is part one of a two-part conversation. Part two drops next week.Watch and listen to new episodes of RareAF every month and follow us on Social Media for all the best moments from the show: https://linktr.ee/RareAFpodcast   This episode is sponsored by Octapharma. The guest appearing in this episode has a professional affiliation with Octapharma and is speaking in her personal capacity. Her statements and perspectives are her own and do not necessarily reflect the views of Octapharma, Heritage Specialty Pharmacy, or any affiliated entities. The views expressed in this podcast are those of the individual speakers and guests and do not necessarily reflect the views of Heritage Specialty Pharmacy. This podcast is provided for informational and educational purposes only and is not intended to provide medical advice or replace the guidance of a qualified healthcare professional. Always consult your healthcare provider regarding medical decisions. Discussion of therapies, products, companies, or treatment approaches is provided for general informational purposes only and does not constitute endorsement, recommendation, or affiliation by Heritage Specialty Pharmacy. Trademarks and brand names mentioned are the property of their respective owners. Content is current as of the date of recording.

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