Self Advocacy in Polycythemia Vera: A Patient's Perspective episode artwork

EPISODE · Aug 20, 2025 · 24 MIN

Self Advocacy in Polycythemia Vera: A Patient's Perspective

from MPN Pod: Stories from the Marrow

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her experiences with advocating for her own health, and the value of staying informed and connected within the PV community. Transparency Statement: The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.  

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Self Advocacy in Polycythemia Vera: A Patient's Perspective

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How long is this episode of MPN Pod: Stories from the Marrow?

This episode is 24 minutes long.

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This episode was published on August 20, 2025.

What is this episode about?

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her experiences with advocating for her own health, and...

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