SFN Dad To Dad 390 - Tom Sander of Charlotte, NC Father of Three Including a Daughter With Charcot-Marie-Tooth Syndrome A Rare From Of MD

Our guest this week is Tom Sander of Charlotte, NC a territory account manager at Liquidia Corporation, a rare disease bio pharma company, and father of three including a daughter with Charcot-Marie-Tooth Syndrome, a rare form of Muscular Dystrophy. Tom and his wife, Julie, have married for 22 years and are the proud parents of three children: Will (22), and twins: Jack (18) and Lily (18) who has Charcot-Marie-Tooth Syndrome, which is a type of Muscular Dystrophy that is a spectrum of nerve disorders.    From a very young age Lily has been speaking in public about her condition and how it’s affected her and others.  She was selected this past year to be one of two national ambassadors for the Muscular Dystrophy Association. We’ll hear all about the Sander famiy story on this episode of the SFN Dad To Dad Podcast. Show Links - Phone – (803) 493-7744Email – [email protected] –  https://www.linkedin.com/in/thomas-sander-30977b12/MDA Website – https://www.mda.org/press-releases/2025/mda-announces-2025-mda-national-ambassador-lily-sanderCharcot-Marie-Tooth Association - https://www.cmtausa.org/Charcot-Marie-Tooth Research Foundation - https://cmtrf.org/YouTube – 2025 Ambassador https://www.youtube.com/watch?v=stJElfj7uqg&t=11sInstagram Video Burn Bootcamp Be Our Muscle - https://www.instagram.com/p/DIRIv74ODkt/ Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/