Share your story! But only if you want to.

from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease

Patient Worthy team members Rebekah and Ilana discuss the role of story sharing in the rare disease community. Talking about your experience can be powerful and help forge connections-- but it's also nuanced, deeply personal, and honestly nobody's business if you don't want to share it. Rebekah reads a quote from Rita Charon's book "Narrative Medicine," and also wants to note that, despite what you'll hear on this episode, Charon is actually pronounced more like "Sharon."

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This episode is 26 minutes long.

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This episode was published on March 12, 2020.

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