Sharon Minton: Wife Caregiver to Rob and Advocate for a Rare Cancer

When Sharon Minton's husband Rob broke out in a strange rash, his primary doctor thought it might be an allergic reaction to laundry detergent. What it turned out to be was an extraordinarily rare cancer called Sezary Syndrome, an aggressive form of cutaneous T-cell lymphoma.  In 2013, he was told he had a 25% chance of surviving the next five years. Sharon shares the importance of being YOUR loved one's advocate, even if you have to speak up and be bold at times. After researching with doctors and the Sezary Syndrome community, they decided Rob's best hope would be allogeneic stem cell transplant.  They got on the registry and found an 8 out of 10 match.Sharon walks us through the inspiring story of Rob's transplant, hospital stay, and move to an apartment nearby following the transplant.  She credits exercise (even walking around the unit), friends and family, and her faith for helping them both survive this ordeal.There were setbacks along the way, including cytomegalovirus (CMV), sepsis, and even fungal pneumonia.  But today, Rob and Sharon are both doing well, with Rob running, fishing, and playing pickleball.  The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.For more from the National Bone Marrow Transplant Link, visit us online at nbmtlink.org or call us at 800-546-5268.This season of Marrow Masters is sponsored by the nbmtLINK, Incyte Corporation and The Leukemia & Lymphoma Society.nbmtLINK website: https://www.nbmtlink.org/The Leukemia & Lymphoma Society: https://www.lls.org/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.