Sickle Cell in the Media: Scene & Heard - SCDAA Masterclass

This SCDAA Masterclass, a special episode of Cheat Codes, was recorded live at the Sickle Cell Disease Association of America, Inc. (SCDAA) 2025 Annual National Convention in Chicago and explores the portrayal of sickle cell disease in the media. Panelists share personal stories and discuss the importance of authentic representation, highlighting both the challenges and progress in raising awareness. The conversation emphasizes the power of storytelling to drive advocacy, reduce stigma, and humanize the experiences of those living with sickle cell disease. Listeners will hear insights from patients, filmmakers, and advocates on how media can shape public understanding and support for the sickle cell community. We also hear opening remarks from Brian Goff, CEO of Agios Pharmaceuticals. Learn more about the Sickle Cell Disease Masterclass Series at https://scdaamasterclass.com/ To hear more episodes of Cheat Codes: A Sickle Cell Podcast, please visit https://www.bloodstreammedia.com/cheat-codes

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This episode is 51 minutes long.

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This episode was published on April 23, 2026.

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