Six Lung Collapses, Then A Rare Disease Diagnosis episode artwork

EPISODE · Jun 3, 2024 · 17 MIN

Six Lung Collapses, Then A Rare Disease Diagnosis

from In the Loop with Sasha-Ann Simons

Thirty million people live with a rare disease in the United States. And for many of them, it often takes years to get a diagnosis. For one Chicago woman, those years were marked by uncertainty and doctors’ dismissal of her growing pain as she experienced lung collapse after lung collapse. She was eventually diagnosed with a rare form of endometriosis. Reset sits down with her to hear her story and to talk about how women navigate physical pain and the medical system. For a full archive of Reset interviews, head over to wbez.org/reset.

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Six Lung Collapses, Then A Rare Disease Diagnosis

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This episode was published on June 3, 2024.

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Thirty million people live with a rare disease in the United States. And for many of them, it often takes years to get a diagnosis. For one Chicago woman, those years were marked by uncertainty and doctors’ dismissal of her growing pain as she...

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