Skyclarys Funding Decision in Ireland | Ireland News

Politicians are demanding action as Ireland’s HSE nears a final decision on funding Skyclarys, the only approved drug for Friedreich’s Ataxia—a rare disease affecting just 200 people. Sinn Féin’s leader calls for transparency, noting the drug is already available in several EU countries, while others urge the government to stop the “bullshit” and act fast, stressing that every day matters for patients. The HSE acknowledges some evidence of slowed progression but deems the drug’s high cost and limited impact not cost-effective—yet remains open to further review amid mounting public pressure. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/290b654aeeb6772e