Skyclarys Funding Delay Sparks Urgent Call | Cork News

Patients with rare disease Friedreich’s Ataxia are in urgent need of Skyclarys, a drug already approved and available in other EU countries — but Ireland’s HSE has stalled, citing cost and clinical concerns. Sinn Féin leader Mary Lou McDonald is demanding transparency and action from Taoiseach Micheál Martin, urging a swift decision and exploring all options to ensure patients don’t wait any longer. With families devastated by the delay and a final HSE decision looming, the pressure is mounting for clarity and compassion. Listen in comfort:Get a discount on a Soli Pillow: http://solipillow.com/discount/dnn. Advertise on DNN:[email protected] This is an automated, high-level news summary based on public reporting.Report issues to [email protected]. View sources & latest updates:https://sources.thednn.ai/c21d7de956f4ec8e