EPISODE · Jul 9, 2025 · 32 MIN
Sleeping While Awake | A Life with Narcolepsy Type 1
from Sickboy
Falling asleep is easy—until it becomes the hardest part of your day. Recorded live in Toronto, this episode dives into the unpredictable world of narcolepsy type 1 with Heather, a traditional Chinese medicine practitioner living with both narcolepsy and cataplexy. From sleep-deprived misdiagnoses to lucid hallucinations and arms that give out mid-laugh, Heather walks us through the reality behind the disorder’s misunderstood pop culture image. She opens up about losing her spontaneity, finding community, and redefining rest, all while navigating a healthcare system still catching up. It’s funny, eye-opening, and more than a little dreamlike.
What this episode covers
Falling asleep is easy—until it becomes the hardest part of your day. Recorded live in Toronto, this episode dives into the unpredictable world of narcolepsy type 1 with Heather, a traditional Chinese medicine practitioner living with both narcolepsy and cataplexy. From sleep-deprived misdiagnoses to lucid hallucinations and arms that give out mid-laugh, Heather walks us through the reality behind the disorder’s misunderstood pop culture image. She opens up about losing her spontaneity, finding community, and redefining rest, all while navigating a healthcare system still catching up. It’s funny, eye-opening, and more than a little dreamlike.
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Sleeping While Awake | A Life with Narcolepsy Type 1
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