Speech Therapist & Galactosemia Parent: Feat. Zara & Fin Betts

In this episode Ryan sits down with Zara Betts, a seasoned speech and language therapist, mother of two boys with classic galactosemia, and a powerful voice for early intervention. Joining her is her 12-year-old son Fin, who offers his own thoughtful, candid perspective on growing up with the condition.thegalactosemiapodcast.com – support the show; ad-free and early access episodesLinks & Resources Mentioned:Fin’s YouTube Channel: https://www.youtube.com/@huskygamer16NYT Gene Therapy: https://www.nytimes.com/2025/05/15/health/gene-editing-personalized-rare-disorders.htmlGuest Bio:Zara Betts is a UK-based speech and language therapist with over two decades of experience in early childhood development. She’s also the mother of two boys with classic galactosemia. Drawing from both professional training and personal experience, Zara has become a passionate advocate for earlier, more accessible speech support for families facing rare metabolic disorders. She currently lives with her family on the island of Guernsey, where she works in both clinical and training roles.Fin BetsFin is 12 years old and has lived with classic galactosemia his entire life. He loves chocolate, editing videos, and hanging out with his friends. His favorite subject in school is English.00:00 Intro03:14 Fin's Perspective on Living with Galactosemia04:57 Zara's Background and Family Life06:13 Finn's Birth and Early Challenges08:56 Diagnosis and Initial Struggles14:25 Reflecting on the Emotional Journey22:53 Bode's Birth and Different Experience27:30 Newborn Screening and Healthcare Insights31:54 Sibling Differences in Galactosemia34:28 Navigating Medical Support37:44 Parental Pressure and Child Development41:07 Empathy and Professional Growth47:00 Speech Development and Parental Advice52:28 Fin's Perspective and Future Aspirations