Stop Calling It Engagement If Patients Aren’t at the Table

According to Sue Robins, patient engagement has taken a quiet step backward since 2020. Organizations are looking for MBAs vs people with real lived experience. Patient feedback has been reduced to survey stats. There is still a lack of meaningful compensation for patients sharing their knowledge and insights. Can we improve? Robins is a passionate Patient Advocate and Co-Founder of Bird Comm and has been on all sides of the healthcare system as a caregiver, cancer survivor, and health communications consultant. In an exclusive interview with Swaay.Health she called attention to what is missing from today’s patient experience efforts: real voices, fair compensation, and the courage to do better.