Supporting Rare Disease Communities
from Therapeutic Science and Strategy Hosted by Angela Wheeler
In this special podcast episode in honor of Rare Disease Day 2024, Angela Wheeler, President of Insight at Lumanity and Dr. Karin Hoelzer, Director of Policy and Regulatory Affairs at the National Organization for Rare Disorders (NORD), discuss opportunities for pharmaceutical companies to work with and support rare disease communities. Learn how NORD is strengthening collaboration between pharmaceutical companies and rare disease communities, and examples of the positive impact that can be made when pharmaceutical companies, organizations like NORD, and patient advocates join together. Listen to the full episode to hear Angela ask Karin some important questions, including: What are the biggest opportunities for the rare disease communities in 2024? What are some lessons learned for fruitful collaboration between pharma companies and rare disease communities and organizations like NORD? What policy priorities is NORD focused on in 2024? What role can patient advocates and pharma play in supporting the rare disease community on these issues?
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