Susan MSUD chair for PKU and Allied Disorders talks about MSUD

Send us Fan MailThis video is the third episode of Nutrition Equity a podcast devoloped to promote the Medical Nutriiton Equity Act .  In this episode we talk with Susan Neeleman of the MSUD Community.  Susan is the Vice President of the New England Connection for PKU and Allied Disorders (NECPAD), the editor cf tShe is a powerful leader in the MSUD as well as the Metabolic Community as s whole.  She MSUD Family Support Group news letter, and she is also the MSUD Chair in Canada.Chapter Markers00:00 Intro02:15 What is Maple Syrup Urine Disease MSUD?03:28 How MSUD differs from Diabetes04:15 Diagnosis06:03 Susan's role at the MSUd family Support Group06:39 Susan's role at CANPKU+07:15 Susan's Role at the New England Connection for PKU & Allied Disoorders07:53 Unique Challenges to MSUD Patients09:51 Steos that can be taken to improve Nutrition equity13:53 New Treatments & Therapies15:39 Ensuring equal access to all16:23 Inspiring stories of MSUD patients17:42 Resources & support19:01 /hopes for the future19:29 ConclusionSupport the show