EPISODE · Aug 20, 2021 · 10 MIN
#SYNGAP10 - Ep. 23 - Telling our story and why it matters
from SynGAP10 weekly 10 minute updates on SYNGAP1 · host Mike Graglia, CURE SYNGAP1
Eduardo webinar was amazing, it's on FB Live and we will have the YouTube up soon. Remember to register for Ana in September https://Syngap.Fund/Ana SYNGAP1 is on the Compassionate Access List (CAL) for the SSA. This just happened and it's due to the work of one of our families, thank you! https://Syngap.Fund/SSA Great scientist conversations this week. New researcher looking into SYNGAP1, connecting with local families Rockstars reviewing a multi-gene grant One senior scientist called to say he's got Fish and we should let people know. Stories I will tell to help bring home how not simple this life is. Jadyne https://www.facebook.com/whatweneedyesterday Kyle https://www.youtube.com/channel/UCCbBNmkHLwba--nQ8LX0WCQ Carter https://www.youtube.com/watch?v=f6DsFUz-6HM Emmitt https://www.youtube.com/watch?v=tOampbK0uy0 Amelia https://www.youtube.com/watch?v=gvwJqF_kuBI What is SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1 Donate to our current effort for Clinical Trial Readiness https://Syngap.Fund/CTR Sign up for this #podcast #SYNGAP10 here https://syngap.fund/10 #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics
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#SYNGAP10 - Ep. 23 - Telling our story and why it matters
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