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EPISODE · Dec 9, 2023 · 50 MIN

Taborski McClellen

from Staying Connected

Taborski McClellen was diagnosed with Marfan syndrome between 12-13 years old. In the time since his diagnosis, he’s had two retinal detachments, a lung collapse, and an aortic dissection. In this interview, he talks about his story with Marfan, and his book, Living with Marfan syndrome in the Hands of GOD. Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at thevedsmovement.org, loeysdietz.org, and marfan.org. If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit https://calendly.com/d/z7h-2cc-g33 Links mentioned in the episode: Living with Marfan Syndrome in the Hands of GOD https://www.amazon.com/Living-Marfan-Syndrome-Hands-GOD-ebook/dp/B0BV645L2J/ref=sr_1_1?crid=2NV7UK1OXQWHB&keywords=living+with+marfan+syndrome+in+the+hands+of+god&qid=1702075005&sprefix=living+with+marfan+syndrome+in+the+hands+of+go%2Caps%2C119&sr=8-1 VEDS Research Study: The Role of Community in Mental health: A Grief and Trauma Related Needs Assessment in the Vascular Ehlers-Danlos Syndrome Population https://bit.ly/VEDSsurvey VEDS Collaborative Research Study: Email [email protected] Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events: https://marfan.org/calendar/ Join a Walk for Victory: https://marfan.org/walk/ Help and Resource Center https://marfan.org/ask https://loeysdietz.org/ask https://thevedsmovement.org/ask Support You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons: Jon Holtom Adventuresinlove4Andie Ryan Rodarmer Benjamin Weisman Fiona McIver

Episode metadata supplied by the publisher feed · Published Dec 9, 2023

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Taborski McClellen

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How long is this episode of Staying Connected?

This episode is 50 minutes long.

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This episode was published on December 9, 2023.

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