Tackling tough topics with Renee Cunningham

CTNNB1 mom Renee Cunningham tackles some tough topics. Renee shares why they decided to put her daughter on medicine and about puberty with her daughter. We are not giving medical advice, just sharing one parent’s struggle to make difficult decisions for her child. As we wrapped up we talked about summer plans. I think this is a stressor for many of our families. Our children are used to keeping busy with routines and structures and summer can be overwhelming for many of us. My own fear has always kept me from sending Preston to camp. After hearing Renee talk so passionately about summer camp she has inspired me to look into it for Preston. I hope everyone hearing her story today, will be inspired too.https://www.curectnnb1.org/#raredisease#syndrome