Tell me your UnMet Need. CHCO ProMMiS! Gut Paper with Citizen Health. Rx Repurposing - #S10e164

Tuesday, March 11, 2025 - Week 11CHCO Press Releasehttps://www.linkedin.com/posts/curesyngap1_syngap1-prommis-research-activity-7305258171642654723-5h2e fill spots, email info@curesyngap1 dot orgSYNGAP1 ProMMiS #SynGAProMMiShttps://curesyngap1.org/resources/studies/syngap1-prommis/Need your Voice on Unmet NeedPlease contact me with stories and permission to share. Mike@ PubMed is at 11 YTDhttps://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2025&timeline=expanded&sort=date&sort_order=ascWillsey Lab on Gut Motility, congratulations to Kate McCluskeyhttps://pmc.ncbi.nlm.nih.gov/articles/PMC11885846/pdf/41467_2025_Article_57342.pdfCitizen Health Data in there!https://www.linkedin.com/posts/citizen-health-inc_citizenhealth-autism-guthealth-activity-7304881198676197376-ng3vCitizen Health -  https://www.citizen.health/partners/srf or http://curesyngap1.org/citizenFamily Conf Video on Drug Repurposinghttps://www.youtube.com/watch?v=1S_A1jO28-c - Corey, Lindsay, Zoe and Earl.  Thank you Lindsay.Unravel BioSciences Discussion/PodcastShort: https://www.youtube.com/watch?v=xcB8pv2lKRILong: https://www.youtube.com/watch?v=CYb0ghaRKm8 LinkedIn: https://www.linkedin.com/posts/unravel-biosciences_raredisease-combinedbrain-drugdevelopment-activity-7302440189782540289-u4slBio-Repository and Roadshow Dateshttps://docs.google.com/presentation/d/1IjaHILXj7AlBDlbTJgvYrkBS_0bnI8VCnTIiPXJ7JGM/edit#slide=id.g32f5fa46d32_0_3April 24-25th Nashville, TNJune 14-15th Westminster, COJune 18-21th St. Louis, MOJune 27-28th Phoenix, AZJuly 10-12th Boston, MAJuly 18-19th Denver, COJuly 19-20th Westminster, COJuly 19-20th Windsor Locks, CTSept/Oct TBD Philadelphia, PADec 4-5th Atlanta, GAShare glowing reviews of SRF on Great Non-Profits!https://www.cureSYNGAP1.org/GNPICD-10’s as discussed in #S10e163 (https://www.youtube.com/watch?v=iDvW7HfzSGA) next meeting cancelled.  Time to go for ICD-11s.https://www.cdc.gov/nchs/icd/icd-10-maintenance/meetings.htmlDoD Fundinghttps://umdf.org/cdmrp_cuts_action/#MEDICAIDCANTWAIThttps://thearc.org/policy-advocacy/medicaid/medicaidcantwait/Episode 164 of #Syngap10 #Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1 #SynGAP #SynGAProMMiS