The #1 Problem with Hospice Care Today (and how we can fix it) episode artwork

EPISODE · Mar 17, 2026 · 22 MIN

The #1 Problem with Hospice Care Today (and how we can fix it)

from Ask a Death Doula · host Suzanne B. O’Brien RN

Most people believe hospice means that medical professionals will come in and take care of everything when someone is dying. But the reality is very different. In this episode, Suzanne B. O’Brien RN — former hospice and oncology nurse who has cared for more than 1,000 patients at the end of life — reveals the number one problem with hospice care today and why so many families feel overwhelmed during one of the most important moments of life. The truth may surprise you. Hospice was designed to provide comfort, guidance, and medical oversight, but the majority of hands-on care actually falls to family members at home.  In fact, families often find themselves responsible for tasks such as: administering medications managing symptoms bathing and repositioning their loved one monitoring breathing and physical changes All while navigating grief, exhaustion, and fear. Many families enter hospice believing full-time care will be provided — only to discover that nurses and hospice staff may visit periodically while loved ones provide most of the daily care. This isn’t a failure of hospice. It’s a missing piece of education. The Real Problem Over the past 100 years, death has become increasingly medicalized. Historically, families knew how to care for loved ones at the end of life. These sacred caregiving skills were passed down from generation to generation. But as death moved into hospitals and institutions, those skills quietly disappeared. Now hospice has brought death back into the home — but the knowledge never returned with it. As a result, families are often asked to do one of the most profound acts of care in life without ever being taught how. The Solution The answer isn’t more medicalization. The answer is education before crisis. For the past 16 years, the Doulagivers Institute has been working to restore the lost skills of end-of-life care through education and community training. To date: 400,000 people have been trained Participants come from over 39 countries The training is offered free each month The mission is simple: End-of-life care is a human right. Every family deserves to know how to care for their loved one with confidence, dignity, and peace. What You’ll Learn in This Episode The #1 misunderstanding about hospice care Why families often feel unprepared during the dying process The historical reason we lost end-of-life caregiving skills Why hospice alone cannot meet the needs of families The simple solution that can transform end-of-life care worldwide About Suzanne B. O’Brien RN Suzanne B. O’Brien is a former hospice and oncology nurse who has cared for over 1,000 patients at the end of life. She is the founder of the Doulagivers Institute and author of the international bestseller The Good Death: A Guide for Supporting Your Loved One Through the End of Life. Her mission is to ensure that every family in the world has access to the knowledge and tools needed to support a peaceful and sacred end-of-life experience. Learn the Skills Before You Need Them Join the free Doulagivers Level 1 End-of-Life Doula Training, attended by hundreds of thousands of people around the world.  These are the sacred caregiving skills every family deserves to know. 👉 Learn more: https://doulagivers.com Share This Episode If this conversation resonates with you, please share it with someone you love. Because one day, someone you care about will need these skills — and the greatest gift we can give is knowing how to care for each other at the end of life.  Join the upcoming FREE Doulagivers Level 1 End of Life Doula and Family Caregiver Training Webinar here Join us at Life Café here  Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE  Or visit our website here!  GET THE GOOD DEATH BOOK Here      Please Share!   Know someone who is a caregiver, healthcare worker, or spiritual seeker? Share this episode and invite them to join this sacred and supportive experience.    Listen & Subscribe: Available on Apple Podcasts • Spotify • Google Podcasts • YouTube       JOIN MY FREE TRAINING AND MEMBERSHIP SITE   This is a community-supported group hosted by Suzanne B. O'Brien RN, founder of the International Doulagivers Institute for training those who want to be professional End of Life Doulas, Doulagiver Practitioners and for anyone wanting more EOL education Join Here: 4491664174178077   ⚑ SUBSCRIBE TO MY CHANNEL ⚑ If you want to do great things you need to have a great environment. Create the life you want by surrounding yourself with positivity and watching daily.  Click here to subscribe!   ツ  CONNECT WITH ME  ツ Leave a comment on this video and it'll get a response. Or you can connect with me on different social platforms too: Instagram Facebook TikTok Website Podcast

Most people believe hospice means that medical professionals will come in and take care of everything when someone is dying. But the reality is very different.In this episode, Suzanne B. O’Brien RN — former hospice and oncology nurse who has cared for more than 1,000 patients at the end of life — reveals the number one problem with hospice care today and why so many families feel overwhelmed during one of the most important moments of life.The truth may surprise you.Hospice was designed to provide comfort, guidance, and medical oversight, but the majority of hands-on care actually falls to family members at home. In fact, families often find themselves responsible for tasks such as:administering medicationsmanaging symptomsbathing and repositioning their loved onemonitoring breathing and physical changesAll while navigating grief, exhaustion, and fear.Many families enter hospice believing full-time care will be provided — only to discover that nurses and hospice staff may visit periodically while loved ones provide most of the daily care.This isn’t a failure of hospice.It’s a missing piece of education. The Real ProblemOver the past 100 years, death has become increasingly medicalized.Historically, families knew how to care for loved ones at the end of life. These sacred caregiving skills were passed down from generation to generation.But as death moved into hospitals and institutions, those skills quietly disappeared.Now hospice has brought death back into the home — but the knowledge never returned with it.As a result, families are often asked to do one of the most profound acts of care in life without ever being taught how. The SolutionThe answer isn’t more medicalization.The answer is education before crisis.For the past 16 years, the Doulagivers Institute has been working to restore the lost skills of end-of-life care through education and community training.To date:400,000 people have been trainedParticipants come from over 39 countriesThe training is offered free each monthThe mission is simple:End-of-life care is a human right.Every family deserves to know how to care for their loved one with confidence, dignity, and peace. What You’ll Learn in This EpisodeThe #1 misunderstanding about hospice careWhy families often feel unprepared during the dying processThe historical reason we lost end-of-life caregiving skillsWhy hospice alone cannot meet the needs of familiesThe simple solution that can transform end-of-life care worldwide About Suzanne B. O’Brien RNSuzanne B. O’Brien is a former hospice and oncology nurse who has cared for over 1,000 patients at the end of life. She is the founder of the Doulagivers Institute and author of the international bestseller The Good Death: A Guide for Supporting Your Loved One Through the End of Life.Her mission is to ensure that every family in the world has access to the knowledge and tools needed to support a peaceful and sacred end-of-life experience. Learn the Skills Before You Need ThemJoin the free Doulagivers Level 1 End-of-Life Doula Training, attended by hundreds of thousands of people around the world. These are the sacred caregiving skills every family deserves to know.👉 Learn more:https://doulagivers.com Share This EpisodeIf this conversation resonates with you, please share it with someone you love.Because one day, someone you care about will need these skills — and the greatest gift we can give is knowing how to care for each other at the end of life.  Join the upcoming FREE Doulagivers Level 1 End of Life Doula and Family Caregiver Training Webinar here Join us at Life Café here  Register to join us for FREE: THE GOOD DEATH BOOK CLUB EXPERIENCE: 12 MONTH FREE DEATH AND DYING COURSE  Or visit our website here!  GET THE GOOD DEATH BOOK Here      Please Share!   Know someone who is a caregiver, healthcare worker, or spiritual seeker?Share this episode and invite them to join this sacred and supportive experience.    Listen & Subscribe:Available on Apple

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This episode is 22 minutes long.

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This episode was published on March 17, 2026.

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Most people believe hospice means that medical professionals will come in and take care of everything when someone is dying. But the reality is very different. In this episode, Suzanne B. O’Brien RN — former hospice and oncology nurse who has...

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