The Caregivers Hangout | decisions with covid & looking after self

On this episode Rod talks about the impacts covid has made with the appointments with his mum and procedures. Also taking the steps to reach out and get the help that he needs as his role as a caregiver transitions. The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma’s journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe’s a single mum who’s disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she’s autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren’t the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It’s really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/