EPISODE · Nov 4, 2025 · 18 MIN
The Dementia Deck: Planning with Clarity While You Still Can | S2EP54
from Thoughtful Planning · host Santiago and Honey Bueno
Episode Summary: According to Compassion & Choices, one in three older adults will die with dementia. Honey & Santiago introduce The Dementia Deck, a 41-card conversation tool to express your care preferences while clear of mind. They discuss caregiving worries, feeding tubes, late-stage care decisions, and fears about living with dementia. Essential Question: If you were diagnosed with dementia tomorrow, would your loved ones know what kind of care matters most to you? Content Warning: This episode discusses dementia and its challenges. If you or someone you love is dealing with dementia, please take care of yourself. This episode introduces a planning tool, not professional help. Disclaimer: This episode is for educational purposes only. We are not doctors, therapists, or lawyers. Key Takeaways: • 1 in 3 older adults will die with dementia; 14 million Americans by 2050 • Alzheimer's deaths increased 145% while heart disease deaths decreased 9% (last 20 years) • Dementia Deck has 41 cards for exploring care preferences while clear-minded • Younger onset dementia can begin in 30s or 40s • Start with comfort questions (music, hobbies) before heavy care decisions • As of October 2025, Nevada is only state with dementia-specific advance directive forms • Other states: use dementia-directive.org form as addendum • This is a conversation starter, NOT legal documentation Episode Highlights: [0:04] Cold open: Dementia statistics [2:28] Essential question [2:38] Younger onset dementia (30s/40s) [3:00] The Dementia Deck: 41 cards [4:36] Card 1: Caregiver worries [6:05] Accepting help & self-care [7:55] Card 2: Feeding tube decisions [9:25] Card 3: Late stage care [10:42] Open question: Biggest worries [10:55] Santiago: Being a burden [11:38] Honey: Forgetting loved ones [12:20] Caring is loving, not burdensome [13:52] Legal documentation options [15:27] Practical tips [17:00] Where to get the deck [18:01] Closing thoughts Action Steps: ✅ Order The Dementia Deck at thedeathdeck.com ✅ Start with comfort questions (music, hobbies, sources of joy) ✅ Include the right people in the conversation (spouse, adult children, siblings) ✅ Have the conversation more than once as preferences change ✅ Document the answers (record or take detailed notes) ✅ Share your wishes with your power of attorney, adult children, doctor ✅ Get the form at dementia-directive.org ✅ Talk to estate planning attorney about adding as addendum to advance directives Resources: • The Dementia Deck: https://thedeathdeck.com/collections/shop-all-decks • Dementia Directive Form: https://dementia-directive.org • Episode 33 - Psychiatric and Dementia Directives: https://youtu.be/cH9Jc_8LNlE • Compassion & Choices - Dementia and End-of-Life Care: https://compassionandchoices.org/resource/dementia-and-end-of-life-care/ • Death Deck Episode: https://youtu.be/m6w0HpWhU_g • EOL Deck Episode: https://youtu.be/4xvGIQAdizI Connect: Website: https://www.legacytoolkit.com/podcast Email: [email protected] Facebook: https://www.facebook.com/legacytoolkitwithsantiagoandhoney LinkedIn: https://www.linkedin.com/company/legacy-toolkit Keywords: Dementia Deck, dementia planning, advance directives, dementia care preferences, Alzheimer's planning, caregiving, end-of-life planning, dementia directive, memory care decisions Learn more about your ad choices. Visit megaphone.fm/adchoices
What this episode covers
Episode Summary: According to Compassion & Choices, one in three older adults will die with dementia. Honey & Santiago introduce The Dementia Deck, a 41-card conversation tool to express your care preferences while clear of mind. They discuss caregiving worries, feeding tubes, late-stage care decisions, and fears about living with dementia. Essential Question: If you were diagnosed with dementia tomorrow, would your loved ones know what kind of care matters most to you? Content Warning: This episode discusses dementia and its challenges. If you or someone you love is dealing with dementia, please take care of yourself. This episode introduces a planning tool, not professional help. Disclaimer: This episode is for educational purposes only. We are not doctors, therapists, or lawyers. Key Takeaways: • 1 in 3 older adults will die with dementia; 14 million Americans by 2050 • Alzheimer's deaths increased 145% while heart disease deaths decreased 9% (last 20 years) • Dementia Deck has 41 cards for exploring care preferences while clear-minded • Younger onset dementia can begin in 30s or 40s • Start with comfort questions (music, hobbies) before heavy care decisions • As of October 2025, Nevada is only state with dementia-specific advance directive forms • Other states: use dementia-directive.org form as addendum • This is a conversation starter, NOT legal documentation Episode Highlights: [0:04] Cold open: Dementia statistics [2:28] Essential question [2:38] Younger onset dementia (30s/40s) [3:00] The Dementia Deck: 41 cards [4:36] Card 1: Caregiver worries [6:05] Accepting help & self-care [7:55] Card 2: Feeding tube decisions [9:25] Card 3: Late stage care [10:42] Open question: Biggest worries [10:55] Santiago: Being a burden [11:38] Honey: Forgetting loved ones [12:20] Caring is loving, not burdensome [13:52] Legal documentation options [15:27] Practical tips [17:00] Where to get the deck [18:01] Closing thoughts Action Steps: ✅ Order The Dementia Deck at thedeathdeck.com ✅ Start with comfort questions (music, hobbies, sources of joy) ✅ Include the right people in the conversation (spouse, adult children, siblings) ✅ Have the conversation more than once as preferences change ✅ Document the answers (record or take detailed notes) ✅ Share your wishes with your power of attorney, adult children, doctor ✅ Get the form at dementia-directive.org ✅ Talk to estate planning attorney about adding as addendum to advance directives Resources: • The Dementia Deck: https://thedeathdeck.com/collections/shop-all-decks • Dementia Directive Form: https://dementia-directive.org • Episode 33 - Psychiatric and Dementia Directives: https://youtu.be/cH9Jc_8LNlE • Compassion & Choices - Dementia and End-of-Life Care: https://compassionandchoices.org/resource/dementia-and-end-of-life-care/ • Death Deck Episode: https://youtu.be/m6w0HpWhU_g • EOL Deck Episode: https://youtu.be/4xvGIQAdizI Connect: Website: https://www.legacytoolkit.com/podcast Email: [email protected] Facebook: https://www.facebook.com/legacytoolkitwithsantiagoandhoney LinkedIn: https://www.linkedin.com/company/legacy-toolkit Keywords: Dementia Deck, dementia planning, advance directives, dementia care preferences, Alzheimer's planning, caregiving, end-of-life planning, dementia directive, memory care decisions Learn more about your ad choices. Visit megaphone.fm/adchoices
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The Dementia Deck: Planning with Clarity While You Still Can | S2EP54
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