The Economic Burden of Rare Disease

from Wait, How Do You Spell That? A Rare Disease Podcast · host waithowdoyouspellthatraredisease

This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org Learn more about Team Joseph here: www.teamjoseph.org

Episode metadata supplied by the publisher feed · Published Feb 26, 2021

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The Economic Burden of Rare Disease

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This episode was published on February 26, 2021.

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