The Economic Burden of Rare Disease - Wait, How Do You Sp...

What this episode covers

This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss how these numbers assist in rare disease advocacy. Read the full study here: www.everylifefoundation.org/burden-study Learn more about the EveryLife Foundation for Rare Diseases here: www.everylifefoundation.org Learn more about Team Joseph here: www.teamjoseph.org

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Frequently Asked Questions

How long is this episode of Wait, How Do You Spell That? A Rare Disease Podcast?

This episode is 32 minutes long.

When was this Wait, How Do You Spell That? A Rare Disease Podcast episode published?

This episode was published on February 26, 2021.

What is this episode about?

This week, we speak with Annie Kennedy from the EveryLife Foundation about their groundbreaking study examining the economic burden of rare disease. We're joined by Marissa Penrod from Team Joseph, a Duchenne muscular dystrophy nonprofit to discuss...

Can I download this Wait, How Do You Spell That? A Rare Disease Podcast episode?

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