The Fundamentals of Sharing Data

Sharing data transparently, whether at a local or a national level, is a foundational contributor to healthcare quality. Atul Gawande wrote about this in his 2004 essay labeled 'The Bell Curve'. Over the last several decades, we have seen many pediatric specialties organize and collaborate around data collection at a national scale to improve care. We've seen firsthand how our hospital's participation in a national cardiac critical care registry has driven quality improvement, better measurable outcomes and improved cardiac arrest rates for patients. Getting the data collection right is the first challenge. In between that first step and actually seeing improvements is a tremendous amount of work. In this episode, we explore the value of data sharing and transparency to improve outcomes for kids. Our experts for this episode are Carly Scahill, DO, and Kelly O'Neil. Dr. Scahill specializes in pediatric cardiology as a pediatric cardiac intensivist. She is also the Fellowship Director for pediatric cardiology and the cardiac intensive care unit (CICU), as well as an associate professor of pediatrics at the University of Colorado School of Medicine. Kelly O'Neil is a registered nurse and the Manager of the Heart Institute Data Registries and Outcomes. Before her current role, she was a CICU nurse for over ten years. Some highlights from this episode include:  The purpose and use of clinical registries  How data collection improves measurable outcomes  The future of data collection in healthcare  How to get more entities involved  For more information on Children's Colorado, visit: childrenscolorado.org.