EPISODE · Jun 28, 2024 · 45 MIN
The Importance of Community-Based Organizations for the SCD Community
from Cheat Codes: A Sickle Cell Podcast
Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharmaceutical companies, and legislators. Panelists Include: Rae Blaylark (Sickle Cell Foundation of Minnesota) - Twitter/X - Facebook - LinkedIn - Instagram Howard Ffrench (SCDAA Miami) - Facebook TaLana Hughes (Sickle Cell Disease Association of Illinois) - LinkedIn - Facebook - Twitter/X Tabatha McGee (Sickle Cell Foundation of Georgia, Inc.) - LinkedIn - YouTube - TikTok - Twitter/X - Instagram Dr. Wanda Whitten-Shurney (SCDAA Michigan Chapter) - Instagram - Facebook - LinkedIn DeMitrious Wyant - Website SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease. Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community. TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.
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The Importance of Community-Based Organizations for the SCD Community
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