The Marilyn Jackson Story
from SCD Stories Hosted by Marilyn Jackson, Dwayne Golden
Host: Dwayne Golden Guest: Marilyn Jackson, grandmother, vegan chef, and sickle cell disease advocate Discussion on the prevalence of sickle cell disease globally and its limited awareness in the United States Marilyn’s experience after her grandson's sickle cell diagnosis, and the medical journey that followed The need for increased education and resources for families of children with sickle cell Marilyn’s role in advocating for better care, proactive health strategies, and support for families A look into Marilyn’s personal connection to sickle cell trait and her commitment to helping others navigate this condition Invitation for other families to share their stories on SCD Stories
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What this episode covers
In this heartfelt episode of SCD Stories, Dwayne Golden speaks with Marilyn Jackson, a devoted grandmother, vegan chef, and sickle cell disease advocate. Marilyn shares her powerful journey supporting her young grandson, who was diagnosed with sickle cell disease just weeks after birth. She discusses the challenges her family has faced, the lack of adequate information for caregivers, and her mission to educate herself and others about the disease. Through her story, Marilyn emphasizes the importance of community support, education, and proactive health management. This episode sheds light on the impact of sickle cell disease and highlights the dedication of families who advocate tirelessly for their loved ones.
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