THE MS CAREGIVER: Navigating this Critical Role with Realistic Expectations and Grace

EPISODE NOTES: The evolution of the amount of care required over time Failing drugs, failing health When doctors don't acknowledge caregiver input Preserving the patient's dignity Being a spouse and a carer The price a carer can pay if they don't tend to their own healthcare needs Never underestimate how stress can affect a caregiver's wellbeing You can't care for the patient if you don't care for yourself Home modifications to make life easier for the patient and the caregiver When your home feels like a medical facility Handling a patient who has bouts of anger or lashes out The Mirror Theory Not taking a patient's behavior personally The importance of support groups Explaining your situation to family and friends How to approach a child about a parent's illness How organization is the key to your sanity Utilizing white boards and diaries Don't panic. Get help. Planning for the future when your partner has a chronic illness Don't stop planning for the future. Plan differently. Don't lose yourself. Ask for help. You are not alone. LINKS: MS Caregiver Support Group Aaron and PPMS The MS Gym Brooke Slick