The Power of a Click (ft. Kristine)

Episode 12 of Real Talk with @butyoudontlooksickofficial and @findyourrare On this week’s episode, Kristine and I, both individuals with internet-reliant businesses, discuss what the reality of being chronically ill and online is. Our discussion focused on the online communities and the issue of competition between individuals with both chronic illness/disability/etc and a platform. Oftentimes, we’ve found in our efforts to collaborate with those individuals that there is an uncomfortable amount of a sense of competition, rather than comradery and support. We don’t quite understand that mentality! We both agree that anyone’s success in our community is a success for us as well. Kristine and I talk about our diagnostic journeys and how in medicine, every process is a circle. In our businesses, both she and I’s goal is to be able to change the shape of the medical process for patients- to one more centered on the patient. After all, who is the medical business helping, if not for the patients? About Our Guest: Dealing with the diagnostic journey for several years to find an answer, two years later found her believed diagnosis is actually a misdiagnosis, and back through the process she goes! Kristine’s passion was found in the most difficult stage of any chronic patient, when one has the illness but doesn't know the diagnosis. Looking for answers to her illness and finding none, she decided to create the resource she needed for herself: RARE. Now, RARE is a popular retail company for chronically ill individuals to have both representation, community, and a resource. Inclusive to all ailments: chronic, disabling, degenerative, mental, invisible- RARE is a collective company for all patients. Check Kristine and RARE out @findyourrare About The Host:  Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick." After battling a rare neurological disorder for over 7 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com Edited by: IZ @iz_indelicato Final Edit: Taylor @plottwistparenting Podcast Manager: Bella @itsbellawhit --- Support this podcast: https://anchor.fm/melody-olander/support Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.