EPISODE · May 8, 2026 · 27 MIN
The rare disease treatment gap
Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophosphatasia, which weakens bones and can cause early tooth loss, but then spent decades without answers. A chance connection later in life led him to life-changing treatment. Now he’s pushing for faster, more consistent care for others with rare diseases.
What this episode covers
Three million Canadians live with a rare disease, but many still struggle to get treatment. Jeremy Harany was diagnosed as a child with hypophosphatasia, which weakens bones and can cause early tooth loss, but then spent decades without answers. A chance connection later in life led him to life-changing treatment. Now he’s pushing for faster, more consistent care for others with rare diseases.
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The rare disease treatment gap
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