The role of patient voice in informing government treatment funding decisions - The live case of funding a new CIDP treatment in Australia

Patient Voice matters!! This is always true, but especially when governments are considering whether to fund new treatments. With the Australian Government considering whether to fund a new CIDP treatment later this year. Nicole Tait and I take a look at the process the Pharmaceutical Benefits Advisory Committee are following, with special regard to how those affected by CIDP can share their experiences and input to the process. This is a deliberately focused episode aimed at explaining why submissions are important and where you can go for help to make one. Deadline for submissions is 16 September so time is of the essence. For more information you can go reach out to GBS/CIDP Support Australia via the contact button on their website (https://gbscidpsupport.org.au/) or by emailing [email protected]. The submission website is at https://ohta-consultations.health.gov.au/ohta/pbac-november-2026/