EPISODE · Sep 6, 2023 · 52 MIN

The story of Alexa and PIGN-CDG

from GlycoCast, a journey of families, sugars and rare disorders · host Ivan Martinez Duncker

Hosts Karen Morici and Dr. Ivan Martinez will talk to CDG mom Ashleigh Linthicum and Dr. Andrew Edmondson from the Children's Hospital of Philadelphia about the story of Ashleigh's daughter Alexa and PIGN-CDG a rare disorder that is part of their family journey. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.

Episode metadata supplied by the publisher feed · Published Sep 6, 2023

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The story of Alexa and PIGN-CDG

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