EPISODE · Feb 12, 2026 · 23 MIN
The Sun and Me: My Journey with Sunflower Syndrome
from On and Off The Spectrum · host Dr. Esther Hess and Dr. Ann Kirsch
Dr. Ann and Dr. Estie interview college freshman Uma Nambiar. She has just written a children's book about her and her twin's experience with a rare genetic disorder, from diagnosis to successful treatment. A rare 'child's eye view' of what it's like to feel 'different' in the world, getting support from your community while normalizing medical trauma. Stay in touch!This podcast is a conversation, and we’d love to hear from you. If you have questions, topics you’d like us to explore, or are interested in being a guest on a future episode, email us at [email protected] / Writer / Author: ROSSANO GENTILI - SIAE IPI: 161539866
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Dr. Ann and Dr. Estie interview college freshman Uma Nambiar. She has just written a children's book about her and her twin's experience with a rare genetic disorder, from diagnosis to successful treatment. A rare 'child's eye view' of what it's like to feel 'different' in the world, getting support from your community while normalizing medical trauma. Stay in touch! This podcast is a conversation, and we’d love to hear from you. If you have questions, topics you’d like us to explore,...
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The Sun and Me: My Journey with Sunflower Syndrome
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