They Didn’t Believe My Pain - The Brutal Truth About Sickle Cell - Okiki | MWTV Podcast S1:Ep8.

This episode explores the lived reality of sickle cell disease the truth, the triggers, and the challenges of care.Our guest shares that sickle cell warriors face far more than physical pain they also confront stigma, misinformation, and neglect, particularly in rural areas where awareness is low and access to care is limited.In this heartfelt and informative video, he highlights the key areas doctors focus on during a crisis: pain management, rehydration, and infection control.He also emphasizes the importance of knowing your personal triggers, staying consistently hydrated, and prioritizing proper nutrition.We further delve into how bone marrow transplants (BMT) can reduce the frequency of crises, though they do not change one’s genotype a crucial consideration for those planning to have children.Whether you’re a warrior, a caregiver, or simply seeking to understand more, this video offers valuable insight into the daily resilience and strength of those living with sickle cell disease.Remember to use #MWTV or #MWTVPodcast to share your thoughts while listening to the podcast on all social media platforms. Rate the show 5 stars on whatever app you listen to and leave a review.Share with everyone you know, and if you also watch on YouTube, subscribe, like, and leave a comment!Make sure to follow us on;Instagram: @marywiththevoiceYouTube: @MaryWithTheVoiceTikTok: @mary_withthevoice