They Lost Their Daughter at Age 2. This Is How They Found Their Way Forward.

Grief and healing often change the direction of our lives in ways we never expected. In this conversation, we explore child loss, healing through storytelling, resilience, and how one family transformed heartbreak into purpose and advocacy.I sit down with Dr. Matt Goldstein and Myra Sack to discuss the life and legacy of their daughter, Havi, who passed away from Tay-Sachs disease at the age of two. Together, they share how they navigated unimaginable grief, preserved their marriage, and found ways to honor Havi's impact on the world through storytelling, movement, community, and service.Myra shares insights from her book Fifty-Seven Fridays, while Matt discusses the inspiration behind JScreen, a nonprofit dedicated to expanding access to genetic testing and preventing hereditary diseases. Together, they offer a powerful perspective on grief, healing, public health, and the importance of living fully in the face of uncertainty.In this episode:• Honoring the life and legacy of Havi• Healing through storytelling and shared experiences• Preserving a marriage after the loss of a child• The role of movement, community, and ritual in grief• Turning pain into purpose and advocacy• Expanding access to genetic testing and healthcare• What families should know about preventive genetic screening• Finding meaning after profound lossConnect with Dr. Matt Goldstein and Myra Sack:JScreen: https://jscreen.orgE-Motion: https://emotion-mc.org