They Said “It’s Normal”: Living With Undiagnosed Endometriosis

In this episode, I sit down with Sam Edgington from the UK to talk about her journey with endometriosis, from her first symptoms as a teenager to finally receiving a diagnosis years later.Sam shares what it was like experiencing severe pain from a young age and being repeatedly dismissed, told that what she was going through was “normal,” and left without the support or answers she needed.We talk about the isolation that can come with living with symptoms that don’t match what others experience, and how the lack of education around women’s health can leave so many people feeling confused, unheard, and alone.This conversation also goes deeper into the emotional side of chronic illness, the impact on mental health, and how important it is to have spaces where these experiences can actually be talked about openly.Sam also shares the inspiration behind “Echoes,” the support group she’s starting to create connection and community for others going through similar experiences. From online spaces to her vision of building in-person support groups, this is about making sure no one has to navigate this alone.This episode is a reminder that just because something is common doesn’t mean it’s normal, and that your experience deserves to be taken seriously.If you’ve ever felt dismissed, misunderstood, or alone in what you’re going through, this conversation is for you. You’re not alone in this. Keep creating, Keep healing💛- Priscilla Get full access to FLARE Journal at flareendo.substack.com/subscribe