TIffany Patrick on the marathon ‘Mile 19 Magic’ of professionalising patient engagement practices

‘Novo Nordisk has not had any input into the development of the podcasts or the selection of speakers. Novo Nordisk is the sole sponsor of the activity’.In this Pep Talks episode, Emma and Tiffany Patrick (Amicus Therapeutics) discuss the maturation of patient engagement. Tiffany highlights how Amicus embeds patient perspectives into executive decisions, reflecting a wider industry shift where patients are now treated as co-creation partners and expert evidence generators.Key takeaways include:Strategic Value: The field is professionalising, with a focus on measuring impact and aligning with new FDA guidance on patient preferences.Career Advice: Tiffany encourages practitioners to seek non-profit experience and remain intentional about their therapeutic settings.Future Outlook: While AI presents new opportunities, it must be managed with empathy. The speakers conclude that patient engagement is nearing a "marathon finish," supported by new academic and certification standards.