Tomorrow’s Decision: Funding Skyclarys in Ireland

It all comes down to tomorrow for people living with Friedreich’s ataxia, as the HSE decision on funding Skyclarys is due.Valerie McHugh is joined by 28-year-old trainee solicitor and campaigner Emily Felix, who speaks honestly about the nerves, the hope, and the exhaustion after months of fighting for a drug patients say is life-changing — and already approved in 11 other European countries.Emily also explains what day-to-day life with Friedreich’s ataxia can look like as it progresses, and why the “cost” conversation feels so dehumanising.