Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings episode artwork

EPISODE · Nov 4, 2023 · 2 MIN

Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings

from GlycoCast, a journey of families, sugars and rare disorders · host Ivan Martinez Duncker

Will be talking with Ann and Steve Nguyen, sharing the touching story of their son, Emmett who was affected by PIGA-CDG. Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders. For more information on congenital disorders of glycosylation please visit our sponsor at ⁠cdgcare.org.

Episode metadata supplied by the publisher feed · Published Nov 4, 2023

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Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings

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This episode was published on November 4, 2023.

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