EPISODE · Nov 4, 2023 · 2 MIN
Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
from GlycoCast, a journey of families, sugars and rare disorders · host Ivan Martinez Duncker
Will be talking with Ann and Steve Nguyen, sharing the touching story of their son, Emmett who was affected by PIGA-CDG. Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.
What this episode covers
Will be talking with Ann and Steve Nguyen, sharing the touching story of their son, Emmett who was affected by PIGA-CDG. Will understand how Emmett's legacy continues to inspire and bring hope to many. We will also have Dr. Clement Chow whose cutting-edge research is unraveling the mysteries of different rare disorders. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.
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Trailer - Fly-ing Insights: Unraveling Rare Disorders with Tiny Wings
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