Trusting Your Gut: A Mother's Journey to Advocacy in the Face of Rare Disease

What happens when your gut tells you something isn’t right — but the answers don’t come easily?In this episode, Mandy McAllister shares her powerful journey of advocating for her son in the face of a rare disease. She talks about the frustration of not being heard, the turning point when she pushed for more, and the moment she finally felt validated.Mandy reminds us that healthcare is a two-way street: respect, vulnerability, and persistence can change everything. From “taking notes like the crazy lady” to realizing the importance of a supportive village, her story is an inspiring reminder that being firm yet kind can open doors to answers and healing.This is a conversation every parent — and every provider — needs to hear.