Unsung Heroes: Charities and Family Support Groups

Do you know the purpose of family support groups and charities, particularly in the context of rare diseases? Believe it or not, their role tends to be poorly recognised.We have the immense honour to have Bhavna Tailor, founder and CEO of Stargardt’s Connected, to help us set the record straight.Do check Stargardt’s Connected website, stargardtsconnected.org.uk, and feel free to reach out to them via [email protected] the showIn these episodes, we try and digest the latest advances in ophthalmology and ocular research using simple terms. If you like what we do, consider checking our support page and newsletter linked above. We have articles on themes that did not go on to become a full episode, so make sure you subscribe. It's 100% free, although you do get the option to donate too or even become a member of our community, which will give you access to very cool exclusive perks.All of our social media accounts are linked in our podcast website www.eyesonresearch.org.See you in the next episode!